Boston Children’s Hospital patient defying the odds after 22 years of treatment for rare illness
![Boston Children’s Hospital patient defying the odds after 22 years of treatment for rare illness](/img/li/boston-childrens-hospital-patient-defying-the-odds-after-22-years-of-treatment-for-rare-illness-1.jpg)
Luca Paolacci was diagnosed with Apert Syndrome at birth. The genetic disorder causes the fusion of certain bones and affects his motor skills. He has been undergoing surgeries for 22 years at Boston Children's Hospital. Paolo travels back and forth between Massachusetts and his hometown of Zagarolo, Italy.